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🇬🇧 Professor Francesca Darra explains how in the management of rare and complex epilepsies, such as Dravet Syndrome, it is essential to have a clear idea of the frequency of seizures, their variations over time, the semiology, i.e. the type of seizure, and the therapeutic variations.

Isabella Brambilla, President of Dravet Italia Onlus, tells us how the idea of creating the 'Dravet Diary' application was born. Stressing the importance of having a detailed report for doctors in order to understand the evolution of the pathology, especially the progress based also on the therapies adopted

Prof. Dalla Bernardina's testimony underlines the importance of longitudinal and historical observation, with complete information useful for both acute and chronic management for the best care of the Dravet Syndrome patients.

We are very proud to start to share some testimonials about Dravet Diary!

- Dravet Diary is the first electronic diary dedicated to people suffering from Dravet Syndrome, a severe, rare and complex form of epilepsy. - It is a real electronic diary that has the purpose of documenting the seizures, the patient's state of health and the therapy he/she is following. - Through this it is possible to keep the specialists updated on the progress of the disease. The ability to monitor, manage and provide doctors with accurate and updated data is the focus around which the project is based.